As of 11/1/16
The CPSH Housing Survey (English and Spanish) includes questions about housing for adults with IDD and related topics. The responses provide input to current projects and future endeavors.
Below are the responses collected up to 10/21/16, CPSH actions and suggestions to parents and others who care about these adults.
Summary: Most survey participants came from the seven counties in North Texas that CPSH focuses in: Collin, Dallas, Denton, Ellis, Kaufman, Rockwall, and Tarrant Counties. Other responses came from across Texas.
CPSH 2017 action: CPSH will consider expanding focus to other counties based on followers and donors.
Suggestions for parents and others: Followers across the state are encouraged to purchase A Texas Parents' Guide to Independent Living for Adult Children with Intellectual and Developmental Disabilities for a small fee.
Summary: Most of the survey participants came from parents. Several participates self-identified as living with IDD or social challenge. Other participants identified as Private Provider, Aunt/Uncle, Medicaid Service Provider, Medical Professional, and Real Estate Professional
CPSH 2017 action: CPSH will continue to encourage everyone who is interested in housing for special needs adults to participate in CPSH projects.
Suggestions for parents and others: Share our website and e-newsletter.
What year will you need housing?
Summary: Participants specified housing needs up to year 2043. Several participants said their child is under 14. Most of the participants need housing in the next 5 years.
CPSH 2017 action: CPSH will continue to pursue housing options about housing for adults with special needs.
Suggestions for parents and others: Advocate for more housing. Attend CPSH meetings and training. Volunteer with CPSH.
What type of financial support will this person probably receive?
Summary: Participant selected all options (SSI/SSDI, Medicaid Waiver Funds for services, Special Needs Trust, Private pay for services, Achieving a Better Life Experience-ABLE). Most participants selected more than one option. The most popular option was SSI/SSDI. ABLE was the least selected option.
CPSH 2017 action: CPSH will provide more information about ABLE.
Suggestions for parents and others: Go to texasable.org and sign up for email updates
What is your most pressing concern about this person living away from the family they are living with now?
Summary:Participants wrote in answers to this question. The most pressing concerns identified by the participants are Quality of Caregiver, Safety, and Quality of Life
CPSH 2017 action: CPSH will continue to offer Safety Training, here. CPSH will also be discussing caregiver attributes with service organization.
Suggestions for parents and others: Discuss your specific needs for caregivers with your service providers. Look for training classes for your child to develop independent living skills. Teach and practice with your child the skills that you want him/her to use.
What are the TWO best housing options for this person if he/she must move out of the current housing?
Summary:Over the next five years, the overwhelming preferences for housing are homes with 3 or 4 peers and apartment units with one or 2 others. About 10% of the participants prefer a State Supported Living Center.
CPSH 2017 action: CPSH will continue to focus on: Neighborhood Homes (txcpsh.org/nh) for three bedroom homes and two bedroom apartments; Project Independence (txcpsh.org/pi) for all living options.
Suggestions for parents and others: Attend a CPSH presentation to learn more about Neighborhood Homes and Project Independence. Discuss with Medicaid Service Provider the need for state run housing such as a State Supported Living Center, an ICFIDD or an HCS Residential Group Home. Discuss with your child moving out of your home into a home of their own. Attend a CPSH open house hosted by someone with an IDD or social challenge who lives on their own (with supports if needed.)
What environment would be best for this person?
Summary:Over the next five years, the overwhelming environment for housing are homes in suburban areas. Urban areas are also popular.
CPSH 2017 action: CPSH will continue to advocate for housing where ever an individual wants to live.
Suggestions for parents and others: work with CPSH and developers to establish more housing in the environment where your child wants to live. Advocate for your child to live in existing housing in the neighborhood he/she is most familiar with.
What type of transportation does this person need?
Summary:Over the next five years, the most popular response is on call service. In far second place is a local city service.
CPSH 2017 action: CPSH will research transportation options for adults with special needs in the seven county region
Suggestions for parents and others: Contact CPSH is you are interested in participating in this effort, here.
Please describe the type of caregiver you want for this individual.
Summary:Participants wrote in answers to this question. Overwhelming the most popular Caregiver Trait is "caring". The most frequent Caregiver Responsibility is "teach and encourage independence".
CPSH 2017 action: CPSH will share this information with service providers in the seven county region and colleges that have programs for future social workers.
Suggestions for parents and others: Discuss your specific needs for caregivers with your service providers and family members who will be involved in the care of an adult with special needs. Encourage independence while your child lives with you, so you can see and redirect behaviors that may put your child at risk. Attend CPSH Safety Training.
How involved do you want to be in creating housing for this person?
Summary: Almost half of the participants "want to participate and will commit my time in the next few years to make this happen." About 15% of participants "are interested in using a home I have or will purchase to create a Neighborhood Home for this individual and friends". About 15% of participants "would like someone else to identify the housing and help this individual make the transition." Several participants want to volunteer with CPSH to make progress on housing.
CPSH 2017 action: CPSH will follow up with you if you said you want to volunteer.
Suggestions for parents and others: Watch the CPSH calendar and e-newsletter for information about meetings and training.
Thank you for your feedback. CPSH strives to focus our efforts on what you need to help your child transition to independent living. With your support and involvement 2017 will be a great year for our community.